Exploring Family Needs in Pediatric Intensive Care Units: A Comparative Analysis between COVID-19 Isolation and Non-Isolation Settings

Rahmadevita  Septika; Rhahmadiani  Fitri; Rahmatika  Ammelda; Rahmadia  Sari

doi:10.54783/ijsoc.v6i1.998

Rahmadevita Septika PICU RSUP DR M Djamil Padang, Indonesia
Rhahmadiani Fitri PICU RSUP DR M Djamil Padang, Indonesia
Rahmatika Ammelda PICU RSUP DR M Djamil Padang, Indonesia
Rahmadia Sari PICU RSUP DR M Djamil Padang, Indonesia

DOI: https://doi.org/10.54783/ijsoc.v6i1.998

Keywords: PICU, Non-Isolation PICU, Family Needs, Comparison, COVID-19 Pandemic.

Abstract

This article aims to analyze the differences in family needs that arise when children are treated in the COVID-19 Isolation PICU and the COVID-19 Non-Isolation PICU. This research was conducted in the period March 2020 to December 2021. This research is a quantitative study with a retrospective cohort approach. The sampling method used was Non-Probability Sampling. The number of samples for the two groups, namely the COVID-19 Isolation PICU and the COVID-19 Non-Isolation PICU at RSUP DR M Djamil Padang, was 62 people. By detailing aspects such as closeness to the patient, service guarantees, mental support, information, and comfort, this research explores the impact of the pandemic situation on families' experiences during their child's intensive care. The research used quantitative methods with a retrospective cohort study at RSUP DR M Djamil Padang, involving patient families from both groups. The data collection instrument used the Critical Care Family Need Inventory (CCFNI) questionnaire, which was translated into Indonesian. Data analysis was carried out by comparing the frequency distribution of family characteristics, length of stay, and family needs through relevant statistical tests.

References

Abela, K. M., Wardell, D., Rozmus, C., & LoBiondo-Wood, G. (2020a). Impact of pediatric critical illness and injury on families: an updated systematic review. Journal of Pediatric Nursing, 51, 21–31.

Alnajjar, H., & Elarousy, W. (2017). Exploring family needs in neonatal and pediatric intensive care units at King Khaled Hospital-Jeddah. Clinical and Medical Investigations, 2(4), 1–7.

Alsharari, A. F. (2019). The needs of family members of patients admitted to the intensive care unit. Patient Preference and Adherence, 465–473.

Alzawad, Z., Lewis, F. M., Kantrowitz-Gordon, I., & Howells, A. J. (2020). A qualitative study of parents’ experiences in the pediatric intensive care unit: riding a roller coaster. Journal of Pediatric Nursing, 51, 8–14.

Ames, K. E., Rennick, J. E., & Baillargeon, S. (2011). A qualitative interpretive study exploring parents’ perception of the parental role in the paediatric intensive care unit. Intensive and Critical Care Nursing, 27(3), 143–150.

Baird, J., Davies, B., Hinds, P. S., Baggott, C., & Rehm, R. S. (2015). What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit? Journal of Pediatric Nursing, 30(1), 133–142.

Berube, K. M., Fothergill-Bourbonnais, F., Thomas, M., & Moreau, D. (2014). Parents’ experience of the transition with their child from a pediatric intensive care unit (PICU) to the hospital ward: searching for comfort across transitions. Journal of Pediatric Nursing, 29(6), 586–595.

Beytut, D., Gerçeker, G. Ö., & Muslu, G. K. (2018). A qualitative study exploring the needs of Turkish mothers in the Pediatric Intensive Care Unit.

Butler, A., Willetts, G., & Copnell, B. (2017). Nurses’ perceptions of working with families in the paediatric intensive care unit. Nursing in Critical Care, 22(4), 195–202.

Castro, R. E. V. de, Rodríguez-Rubio, M., Magalhães-Barbosa, M. C. de, Prata-Barbosa, A., Holbrook, J., Kamat, P., & Stormorken, A. (2022). A review of key strategies to address the shortage of analgesics and sedatives in pediatric intensive care. Frontiers in Pediatrics, 10, 895541.

Fernández‐Castillo, R., González‐Caro, M., Fernández‐García, E., Porcel‐Gálvez, A., & Garnacho‐Montero, J. (2021). Intensive care nurses’ experiences during the COVID‐19 pandemic: A qualitative study. Nursing in Critical Care, 26(5), 397–406.

Foster, M. J., Whitehead, L., Maybee, P., & Cullens, V. (2013). The parents’, hospitalized child’s, and health care providers’ perceptions and experiences of family centered care within a pediatric critical care setting: A metasynthesis of qualitative research. Journal of Family Nursing, 19(4), 431–468.

Haslbeck, F. B., & Bassler, D. (2020). Clinical practice protocol of creative music therapy for preterm infants and their parents in the neonatal intensive care unit. JoVE (Journal of Visualized Experiments), 155, e60412.

Helmers, A., Palmer, K. D., & Greenberg, R. A. (2020). Moral distress: Developing strategies from experience. Nursing Ethics, 27(4), 1147–1156.

Hill, C., Knafl, K. A., & Santacroce, S. J. (2018). Family-centered care from the perspective of parents of children cared for in a pediatric intensive care unit: an integrative review. Journal of Pediatric Nursing, 41, 22–33.

Howes, C. (2015). Caring until the end: a systematic literature review exploring Paediatric Intensive Care Unit end‐of‐life care. Nursing in Critical Care, 20(1), 41–51.

Hugelius, K., Harada, N., & Marutani, M. (2021). Consequences of visiting restrictions during the COVID‐19 pandemic: An integrative review. International Journal of Nursing Studies, 121, 104000.

Kentish-Barnes, N., Cohen-Solal, Z., Morin, L., Souppart, V., Pochard, F., & Azoulay, E. (2021). Lived experiences of family members of patients with severe COVID-19 who died in intensive care units in France. JAMA Network Open, 4(6), e2113355–e2113355.

Kynoch, K., Chang, A., Coyer, F., & McArdle, A. (2016). The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update. JBI Evidence Synthesis, 14(3), 181–234.

Kynoch, K., Ramis, M.-A., & McArdle, A. (2021). Experiences and needs of families with a relative admitted to an adult intensive care unit: A systematic review of qualitative studies. JBI Evidence Synthesis, 19(7), 1499–1554.

O’Meara, A., Akande, M., Yagiela, L., Hummel, K., Whyte-Nesfield, M., Michelson, K. N., Radman, M., Traube, C., Manning, J. C., & Hartman, M. E. (2022). Family outcomes after the pediatric intensive care unit: a scoping review. Journal of Intensive Care Medicine, 37(9), 1179–1198.

Rennick, J. E., St-Sauveur, I., Knox, A. M., & Ruddy, M. (2019). Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study. BMC Pediatrics, 19(1), 1–10.

Richards, C. A., Starks, H., O’Connor, M. R., & Doorenbos, A. Z. (2017). Elements of family-centered care in the pediatric intensive care unit: an integrative review. Journal of Hospice & Palliative Nursing, 19(3), 238–246.

Rodríguez-Rey, R., Palacios, A., Alonso-Tapia, J., Pérez, E., Álvarez, E., Coca, A., Mencía, S., Marcos, A., Mayordomo-Colunga, J., & Fernández, F. (2019). Burnout and posttraumatic stress in paediatric critical care personnel: prediction from resilience and coping styles. Australian Critical Care, 32(1), 46–53.

Sari, R., & Mansur, A. R. (2023). Pengaruh Fisioterapi Dada Terhadap Volume Tidal Pada Anak Bronkopneumonia Yang Terpasang Ventilasi Mekanik. Jurnal Ilmu Kesehatan Mandira Cendikia, 2(10), 1–7.

Smith, M. A., Clayman, M. L., Frader, J., Arenson, M., Haber-Barker, N., Ryan, C., Emanuel, L., & Michelson, K. (2018). A descriptive study of decision-making conversations during pediatric intensive care unit family conferences. Journal of Palliative Medicine, 21(9), 1290–1299.

Terp, K., Weis, J., & Lundqvist, P. (2021). Parents’ views of family-centered care at a pediatric intensive care unit—a qualitative study. Frontiers in Pediatrics, 9, 725040.

Van Keer, R.-L., Deschepper, R., Huyghens, L., & Bilsen, J. (2019). Challenges in delivering bad news in a multi-ethnic intensive care unit: An ethnographic study. Patient Education and Counseling, 102(12), 2199–2207.

Wantiyah, W., Yunanto, R. A., Setioputro, B., & Nistiandani, A. (2022). Family needs of patients in intensive care unit a literature review.

Wool, J., Irving, S. Y., Meghani, S. H., & Ulrich, C. M. (2021). Parental decision-making in the pediatric intensive care unit: an integrative review. Journal of Family Nursing, 27(2), 154–167.